General Resources
Clinical Trials - www.ClinicalTrials.gov - This government sponsored website provides listings of clinical research studies for all diseases, and gives contact information. Also provides valuable information on the clinical trial process.
National Institute of Health - www.nih.gov - Health information, grants and funding opportunities, news, events, and scientific resources.
National Institute of Neurological Disorders and Stroke - www.ninds.nih.gov. Provides information of neurological disorders and research.
Resources specifically for people and families affected by Parkinson’s disease
American Parkinson Disease Association, Inc. - www.apdaparkinson.org The APDA provides direct patient and caregiver support.
Connecticut Chapter of the American Parkinson Disease Association - www.ctapda.org - Connecticut APDA Center Coordinator Donna Diaz provides education and information about support groups in Connecticut (877) 282-7328.
Parkinson's Foundation - www.parkinson.org - In 2016, the National Parkinson Foundation merged with the Parkinson’s Disease Foundation to form the Parkinson’s Foundation. Today, with offices in New York City and Miami, the Parkinson’s Foundation works towards making life better for people with Parkinson’s disease by improving care and advancing research toward a cure.
Resources specifically for people and families affected by Alzheimer’s disease
Alzheimer’s Foundation of America - www.alzfdn.org - This nonprofit organization seeks to provide care and services to individuals confronting dementia, and to their caregivers and families through member organizations.
Alzheimer’s Association - www.alz.org - This organization provides information and support, funds research, promotes brain health.
National Institute on Aging www.alzheimers.gov - Learn what the federal government is doing and what you can do to address Alzheimer’s and related dementias.
Resources for people and families affected by Huntington’s disease
National Institute of Neurological Disorders and Stroke - www.ninds.nih.gov - The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
Huntington's Disease Society of America - www.hdsa.org - They provide education, an annual conference, in-services to nursing homes and other settings; advocacy for increased homecare services in the community; support via social workers, support groups, genetic counseling, and outpatient clinics, as well as research efforts for treatment and towards a cure.
Huntington Study Group (HSG) - www.Huntington-Study-Group.org - Coordinates and provides enrollment for drug trials across the United States, Canada and Europe.